This is a comment by anonymous on the post “Choosing Thomas: Inside a Family’s Decision to Let Their Son Live, if Only for a Short Time“.
What they did wasn’t right. They chose to give the child this horrible disease, and they made him live for their own selfish benefit.
The child had a right to die, and they prolonged his suffering as long as they possibly could.
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They didn’t “give” him the disease. Their only other option was to kill him. Making they choice to kill their own desperately wanted offspring isn’t easy for some parents, and impossible for others.
There was an article featured not too long ago about a young mother whose son was born with a diease that left him disfigured. I wish I could find the article because it was really beautiful and I can’t do it justice because I can’t remember the whole story. Her baby had no eyes and other issues. She talked about how when she took her son out people would stare, whisper or just say these crazy thing to her about how her son never should have been born. But despite his physical issues, he was a very happy baby and would laugh and make people smile. You could see the love on her face for her son. Some people have perfect looking healthy children and don’t want to be with them.
I don’t understand people that think the only people that have the right to be born are the physically perfect ones. Yes, babies that are born with different diseases will face a tougher life. But if you know this, why would you make it een more difficult as a fellow human being? Why wouldn’t you do what you could to make their life a little easier? A kind smile, sometimes even a helping hand, or something as simple as just treating them as a human being and not making their life about their disability. Just treating them like you would treat someone else deserving of human respect. I think when you are the parent of a child you know is going to be born from different people, you understand that they have a right to be born and given a chance to be in this world. Just like anyone else.
I have nothing but respect for parents that know it’s going to be a tough road but decide to give their child the best chance they can. Every baby has a right to be a part of this world. Not just “healthy” “cute” ones.
No matter what outcome is decided upon, this is no easy road for parents who have to make such choices. Either way, nobody has the right to judge the excruciatingly difficult decisions these parents have to make. And note, not all situations are the same, all cases are varied, so there’s no perfect-fit solution.