When you take your partner’s hand in marriage and you swear to love this person “in sickness and in health,” no one really expects the sickness part to come first. Especially when it begins on the honeymoon.
It was a beautiful sunny day as Kaitlyn and I drove our Jeep rental car up to Mt. Kilauea on the big island of Hawaii. Days into the honeymoon, we had that honeymooner glow: giggling, cuddling, posing for far too many photos that could fit in a scrapbook.
As we pulled up to Hawai’i Volcanoes National Park and began to explore the area, our nostrils flared at the sulfuric smell of volcanic ash and molten lava not too far away from our footsteps.
The geology-lover in me giddied up like a scientist and I pulled Kaitlyn with me to “get a closer look.” But when I walked forward, she tugged backward. With a look on her face that screamed doomsday, she felt intense fatigue, joint pain and mental cloudiness.
Anxiety stiffened her natural mellow posture. This preliminary symptom precipitated into what we eventually discovered to be Lyme Disease: a severely debilitating disease passed on to humans through a tick bite. 300,000 cases are reported each year in the U.S. alone. It affects everyone differently, but the most common include crushing fatigue, severe mental cloudiness, migraines, and intense joint pain. After becoming infected, many with the illness struggle to find the energy to do simple tasks like making breakfast.
It’s been nearly five years since that day on top of Mt. Kilauea. In that time, Lyme Disease took Kaitlyn from running marathons to riding in a wheelchair to go to the farmer’s market.
Through this experience, I’ve grown to learn a thing or two about what it takes to be a better husband when your lover depends on you to be the caretaker. I’m nowhere near perfect and it’s been a harrowing journey, but I’m striding towards being a better man.
For all of you out there who currently play the role of caretaker and strive to be the best spouse for your lover, understand that you’re not alone your journey and I’m right there with you.
Here is what I’ve learned…
5 Tips to be a Better Man in “Sickness and in Health”
1. Be Compassionate When Acute Turns Long-Term
Pema Chodron, author of Living Beautifully, often reminds us of compassion and how the best person we can be is a compassionate one. When we have compassion, we treat everyone around us with love and understanding. And when your spouse is sick, they need a whole lot of love and understanding.
But when acute sickness turns long-term, this isn’t so easy. You need to constantly set reminders and cues to help instill compassion. After six months, even seemingly big events like driving to the emergency room can start to feel routine and you may be less compassionate when taking care of your spouse.
Long-term illness breaks a person down, mentally and physically. Imagine a finish line that keeps moving further away during a marathon and you begin to understand where I’m coming from.
But there’s a deep well of compassion inside all of us. Dr. Paul Coleman, author of Finding Peace When Your Heart is in Pieces, reminds us that “Even when you’re tired and you have a lot of heartache, giving to others is not impossible… compassion may not end your heartbreak, but it could mend heartbreak.”
2. Forget Your Plan
A hero of mine, Joseph Campbell, once said “You must give up the life you planned in order to have the life that is waiting for you.”
Campbell hits the nail on the head with this one. Before we got married, Kaitlyn and I planned to travel the world and vagabond — soaking in the multi-cultural beauty on this planet. We imagined a standard poodle, a baby, and buying a home in San Diego on the beach within the first five years of marriage.
It’s been over four long years and no baby, no poodle, no house on beach. No San Diego. But that’s okay. We’ve learned that extending happiness to hopeful outcomes does little to find happiness in the present.
Instead of dwelling in the negative sea of despair, Kaitlyn has set aside her career as a teacher since leaving the classroom due to her medical condition three years ago and has focused on what she can create. She’s written a novel, created a jewelry line for her novel’s characters, and has turned our kitchen into her office.
As much as we would never have chosen this path, we can’t ignore the beauty that’s come out of it.
3. Find Time for Intimacy
When you become someone’s caretaker, it becomes difficult to switch between playing the role of caretaker and then of a lover.
But you need to touch. You need to spend time physically touching each other. This could be as simple as cuddling or a light massage if sexual intimacy is too difficult.
Try this: at night hold each other in an embrace and share three things you each are grateful for.
4. Make Sure to Speak Their Love Language
Gary Chapman, author of The Five Love Languages, shows us that we can exhaust ourselves showing love to our partners, but if we’re not speaking their love language, our love may not be perceived.
You may just be speaking a different love language if you’re left feeling exhausted and your spouse still doesn’t feel loved.
If “Words of Affirmation” are what your spouse needs, for instance, then you need to speak this language, even if another love language like “Acts of Service” or “Physical Touch” is your favorite form of expression.
When your spouse suffers a long-term illness, they will need more love than ever to help them not feel abandoned.
5. Add “Yet”, Avoid FOMO, and Embrace a Beginner’s Mind
For all those things you feel you are missing out on (and the Fear of Missing Out can be a huge negative spiral), consider adding the word “yet” to these. You can be anything you want to be even if it hasn’t happened… yet.
Consider the concept of “Beginner’s Mind” to curve FOMO.
The Buddha taught us that having a beginner’s mind allows us to approach everyday experiences like we did on day one, with awe and appreciation.
To the beginner, all it takes is a simple sunrise to smile.
There’s more I could add to this list of course, but before that I’d love to hear from you. How are you a better man “in sickness and in health”?
Leave a comment below or send over an email.
Featured Photo by Flickr/Thomas Hawk