A diagnosis brings an unexpected gift to a father.
Jay was diagnosed with Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS) on his second birthday. Needless to say, autism was not the gift we wanted. But after six months of watching him lose skills, language, and personality, the news wasn’t a surprise. Where a silly little boy with a quick smile had been, there was a withdrawn, restless creature that resembled his parents, but seemed to have little connection with my wife and I.
I didn’t sign up for this. My privileged, ivy-covered life path was paved before me, and raising a handicapped child wasn’t even on the map. As the sunlight bled from that afternoon, I couldn’t bear to look at Jay. He was supposed to be my ballgame buddy, my school-play superstar, my refrigerator Rembrandt. Our future seemed so bright—but now, on a day that should have been full celebration and promise, the three of us sat alone with the devastating news in a 776-square-foot box on a colorless, late-winter day.
The news was tough on our marriage. Emma dove into understanding Jay’s condition. She planned his treatment schedule. She called doctors and therapists and clinics, begging for time and advice. I watched, and withdrew. I gained twenty-five pounds. I mourned my lost son. I compressed the sadness into barely concealed rage that came out as blasts of verbal abuse at Emma, or lashes of physical punishment at Jay. For a time, it was all about me.
Not anymore. Autism is a condition that affects an individual, but infects a family. Emma and I sought individual counseling, began taking anti-depressants, and reassessed our lives. More than four years later we have a different, brighter outlook on Jay and his future. But we will continue to struggle with the emotional impact of his condition every day.
This column is intended to accomplish a few things: First, I hope it gives me an outlet to articulate my thoughts and emotions, not just for the reader, but for myself. Second, I want to give a dad’s perspective on raising a boy with autism; I hope that some of what I have learned along this rugged, uncharted road will be helpful to others. Finally, I want to celebrate Jay’s remarkable life and his progress in the face of this daunting challenge. It’s cliché but true: his condition has taught me more about myself than I had ever imagined—or wanted—to learn. Jay’s autism may be the gift I needed.
























I love your honesty already! And I look forward to reading more of your story.
Staying together, continuing getting support, individually and support groups often help.My EX was an
area specialist in autism in the region around Nashville during the ’70′s. Peabody(now a part of Vanderbilt)
trained many of the autism teachers at tha time. They all did their student teaching under my wife. AT that time she was a battleling advocate ,too, for the kids, parents and holding the local board, the state, and legislature accountable under Federal Law, which was the last thing that the families needed.. I got to know several of the families over the years and know the kids as adults. they are functioning in wonderful jobs
with supervisers that know they operate a little differently. One is in a regular staff position in a library in a higher education setting. Another works in a national membership type warehouse. Keep your faith and get as much help as possible forever. We now know a normal brain doesn’t finish developing til age 25. Thats when everything is ready to really learn. I do believe Autistic chilldren do better in quiet small spaces without any type of flourescent lights which all schools use in most places. Good luck.
*fistbump*
Your son’s autism was the gift that you needed. There is a particular lesson for everyone in your family to learn and it can be turned into something positive. Peace, light and blessings always
Glad you chose to right about it. You should also know and believe that you are incredibly fortunate to have your spouse with you who is keenly helping with treatment….etc. I am a single sole-custody dad who had a super-charged demanding engineering/business career and the entire responsibility and care of my awesome 7-year old is with me. It’s been quite the journey so far with difficult choices but I refuse and fail to give up hope.