I felt off balance, slightly woozy, and just “off” in general. Reading was giving me a headache, and I didn’t even feel like watching tv.
I now have enough self-awareness to know that something is amiss so I took a selfie. Sure enough, my eyes are fucked up. I remember early on one of my Doctors telling me that he could know how I was feeling just by looking at my eyes. Then after MONTHS of explaining it to neurologists and others, I finally went to a Functional Neurologist who knew something wasn’t right.
I see this exact look in many other survivors eyes. I can’t quite explain it, but I know it when I see it.
I’ve been fortunate that I’m beginning to feel better physically, and that my eye episodes are less frequent. But when it flares back up, it’s SO exhausting. I have yet to figure out what causes the flare-ups, but I suspect they’re related to my upper neck/lower skull. I’ve probably inflamed something with doing plank pose recently. But I won’t let it stop me. So what if I need an extra nap and to walk more carefully?! I can finally do physical activity again and nothing is getting in my way!
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Amy Zellmer is an award-winning author, speaker, and advocate of traumatic brain injury (TBI). She is a frequent contributor to the Thrive Global and the Goodmen Project, and has created a private Facebook group for survivors and also produces a podcast series. She sits on the Brain Injury Advisory Council (BIAC) through the Brain Injury Association of America’s and is involved with the Minnesota Brain Injury Alliance. She travels the country with her Yorkie, Pixxie, to help raise awareness about this silent and invisible injury that affects over 2.5 million Americans each year. In November, 2015 she released her first book, “Life With a Traumatic Brain Injury: Finding the Road Back to Normal” which received a silver award at the Midwest Book Awards in May, 2016. Her second book,“Surviving Brain Injury: Stories of Strength and Inspiration” is a collection of stories written by brain injury survivors and caregivers and was released November 2016. for more information: www.facesoftbi.com