
Just over four years ago, we brought our youngest son home from the hospital. For the second time. He was three weeks old.
When he was two weeks old, my husband and I made the call to take him back into the doctor. He was spitting up. A lot.
As in, Exorcist-style projectile spit-up. Our oldest hardly spit-up, so we weren’t sure what was going on. But we knew it wasn’t normal.
The next 5 days were the hardest stretch of time I’ve experienced in my entire life. My newborn was diagnosed with Pyloric Stenosis, which meant surgery. At two weeks old. Surgery was scheduled for the following morning, but he spiked a fever overnight.
The surgery was scheduled and rescheduled several times over the next few days while the amazing team of doctors, nurses, and surgeons made sure the fever was indicative of something more serious.
We spent 5 days with my baby hooked up to machines. He was fed nutrients through IV’s. Holding him meant maneuvering the tubing and lines from everything he was attached to. We were unable to ‘fix’ everything for him. It was impossibly hard.
I️ still can’t put into appropriate words my love and thanks for so many people during that time enough. There are simply no words. As hard as it was, the only reason we made it through was our village.
Family and friends stopped what they were doing to help take care of our oldest son. They would come sit with our baby while we got out of the room for an hour. They brought care packages with just the right kind of junk food. They brought homemade dinners. They sat with us for hours so we wouldn’t feel alone.
The entire staff and team of doctors, nurses, and surgeons at our Children’s Hospital went out of their way to make sure we had the information and support we needed. We couldn’t have asked for a better care team.
Looking at my son today, you’d never tell his first few weeks were so hard. But that stretch of time is one I will never forget.
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