Nine year old Ryan Dunne has Duchenne Muscular Dystrophy. Without FDA approval, he’ll never get the meds that might save his life. Here’s how you can help.
Chris Dunne isn’t a trained public speaker. He’s didn’t sign up to be an activist. He’s not a lawyer. He does whatever it takes to make sure his kids get what they need, though, and what his son Ryan needs right now is a medication named eteplirsen. This medication has shown promise in clinical trials for Duchenne Muscular Dystrophy (DMD), a debilitating and inevitably fatal form of the disease, but hasn’t yet be approved by the FDA.
The clock is ticking for Ryan and the other 20,000 kids per year born with DMD. The clock is ticking on Dunne’s petition to get FDA approval for eteplirsen, too. He needs 100,000 signatures on this petition by March 29 in order to keep his mission—and his son—alive.
Please take three minutes out of your day and help out the Dunnes.
—photo courtesy of the author