The Gilda’s Club Conclusion – The Terrifying Power of Social Media

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About Josh Bowman

Josh Bowman is a professional fundraiser, story-teller, comedian, and blogger. He has worked and consulted in Vancouver, New York, and now Toronto for almost a decade. Josh improvises around Toronto, including regular shows with Opening Night Theatre, and also blogs for the Huffington Post. You can email Josh or follow him on Twitter. If you want to submit a guestpost or know more about Josh, check this post and this post out first.

Comments

  1. She told me that every media source she spoke to cited my name. I was absolutely shocked…who am I? …
    I can imagine you became overwhelmed,
    who knows which one of our writings becomes inadvertently viral. I say inadvertently as often a post for a cosy group of regular reader with its ingroup use of words and lessformal writing style, can be easily misunderstood, misinterpreted by a much wider unprimed audience. Had the writer unknown that the work would reach a much wider circulation, they would have written accordingly(which is not necessarily the same as disingenuously). I wonder how many writers now write every article or comment, with one eye guarding against the overpowering storm of inadvertent virality

    Ive often had sympathy for ordinary people that find themselves at the centre of a social or print/broadcast media storm. We ordinary folk just have to stand there naked, defenceless against the wind. At least celebrities etc, have the insulation of their media teams to help them whether the storm.

  2. wellokaythen says:

    The larger issue is that ovarian cancer does not get nearly the attention that it should, in part because breast cancer gets a lion’s share of the attention and focus. So, I can see some benefit in changing the name to something more general. Emphasizing Radner’s name might give the impression that this was some really rare thing that only she had, while using a name like “cancer” or “wellness” reaches out to more people and more resources.

    Breast cancer is far more common than ovarian cancer, but ovarian cancer is far more deadly, and there’s basically no good early detection system like there can be with some kinds of breast cancer. Most women with ovarian cancer don’t know they have it until it’s far advanced. The morbid math of it all is that breast cancer events are so well-attended in part because there are so many (relatively!) survivors of breast cancer, while survivors of ovarian cancer are extremely rare. Relatively few can start a 5K race by announcing they beat ovarian cancer….

Trackbacks

  1. [...] Clubs will be changing their names; it was one specific branch that made the change official. Take a look at this link to read a bit more about this story. Gilda’s Clubs are a fantastic resource for anyone dealing [...]

  2. [...] Now, after speaking with an executive at the Cancer Support Community, Josh has written a post to set the record straight. You can read the full story here. [...]

  3. [...] Josh contacted the Cancer Support Community, and after speaking with an executive, he’s written a post to set the record straight. You can read the full story here. [...]

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